I think I figured out a new definition of love

I was driving down the highway when I think I realized my own personal definition of love. I will be 67 years old in a week or so, but I don’t think my discovery has come too late.

As I drove, I thought of my bride of six months, Candace. And, I smiled. It was the kind of smile that started at my mouth, occupied my entire mind and then made my insides all gooey. It was a smile of gratitude, a smile of comfort. I was consumed by that smile of love. I suddenly wanted to write a love letter to her. I guess this is it.

Passion is great, affection with a great big hug rewards the heart, and concern and care are certainly essential elements of love. But in that flash, I realized that real love brings with it that satisfied, contented and all-absorbing smile. And, I happily realized that smile of love has been a constant in my life.

As I reflected, I realized that smile was always the greatest sign that my late wife Jean and I had something special too. I was able to recall great feelings of satisfaction that were always marked by that smile that grabbed my soul. Even when she is gone I get consumed by that great big smile of love. It happened last weekend when I saw something in our old neighborhood that would have amazed and tickled her. That great big smile of love captivated me.

My kids induce that big, all-encompassing smile. Incredible emotional connections with my daughter, Tracy, warm me with that sort of smile and so do the incredible bouts of repartee I have with my son, Jeff. And the simple thought of my son Jason, who has Down syndrome, grips me with a smile that envelops my entire being. Then there are my two delightful grandchildren, Collin and Kayley. I smile so much when I think of them that I fairly burst. That’s the gooey kind of love.

I sometimes think people look in all the wrong places and for all the wrong emotions for love. I always feel sorry for the young couples who seem to think they are going to hear bells or giant gongs when they fall in love. There are no bells.

Happiness comes when we bask in the comfort, content and satisfaction of loving and being loved. When we find that sweet spot, a great big smile seizes our soul and carries us off to a special place worth celebrating.

Tim McGuire is the author of “Some People Even Take Them Home” A Disabled Dad, A Down Syndrome Son and Our Journey To Acceptance

 

I still don’t like cats but the journey with Clawd and Clementine teaches me a lot

My Dad hated cats. My early love of boxing and my life-long dislike of cats was clearly learned behavior at my Dad’s knee.

When my daughter married a man with a cat I was horrified. Things failed to improve when I met said cat and his successor cat. My dislike for the species catus is legendary. On my late wife’s deathbed she overheard a hospice worker ask me if we had any pets. When I replied “Hell no, I hate pets,” my sarcastic-to-the-end wife told my daughter, “There is no way he can divorce me now, let’s talk cat.” Actually, Jean had never been that anxious for a cat, but the line was funny and demonstrates how much my dislike of cats is rooted in my family’s culture.

The astute among you have more than an inkling of where this is going. Late last year a woman I had been friends with at the Minneapolis Star Tribune contacted me to offer sympathy upon my wife’s death. We had been good work friends in Minneapolis, but not such good friends that I knew she was a cat person.

As we rekindled our friendship and that friendship showed the potential of something much more, Candace  made it clear she had two cats. She credited the cats with getting her through her own grief when her husband, David, died late in 2011. It was abundantly clear that if the relationship had any future at all, the cats were going to be a part of that future. To this moment, the thing that impresses my daughter Tracy the most about my marriage to Candace Hadley McGuire is that the cats were not a deal breaker.

Now, this is a real-life story and not a fairy tale, so I am not going to come before you to testify I fell madly in love with Clawd and Clementine. I still don’t really like them and I get terribly antsy when they jump up on my bed. In my heart of hearts, I believe they are plotting against me. And yet, I have developed a genuine appreciation for the two felines and for Candace’s love for them.

I swear the cats often seem to talk to Candace and she talks back! A year ago I would have scoffed mightily at the notion that the three of them communicate in any way. Now I am not so sure.

The other day I grabbed for a tie on a tie hanger in our closet and I dropped it. As I reached for the tie on the floor I grabbed some cat. After my record leap in the air I realized I had discovered Clementine’ top-secret hiding place that neither I, nor Candace, knew about. Cut to a day later when Clementine was whining incessantly to Candace. Candace was almost at her wit’s end when she followed the cat into our bedroom and realized that the closet door to Clementine’s secret hiding place was closed. Candace opened it and all was well. That impresses the heck out of someone who has always believed cats were incapable of communication.

Clementine does not seem well and that has made Candace very sad because she believes she is about to lose her long-time companion and savior. And anything that makes my lovely new wife sad, makes me sad. A year ago I would have been sympathetic but not very empathetic. That has changed.

Don’t hold your breath for me to become a cat lover, but by opening my mind and watching the incredible bond between two cats and an extremely intelligent woman I think I finally get it. After a lifetime of closing my mind, I understand that it just might be possible that the creatures really do relate to humans on a deep and important level that demands respect and even a little awe.

My tolerance and respect for cats is growing, but I still wish they’d stay off my bed!

Tim J McGuire is the author of “Some People Even Take Them Home” A Disabled Dad, A Down Syndrome Son and Our Journey To Acceptance

Jason, the remarkable gift that keeps on giving

A million thoughts flooded my brain Saturday as I married the lovely and charming Candace Medd Hadley. I will probably discuss many of them in future posts, but my son with Down syndrome, Jason McGuire, took a big share of those thoughts.

Jason was his ebullient self throughout the day, though he was particularly worried about the one task I assigned him. Jason was in charge of handing the wedding rings to the priest. His incredibly loving siblings, Tracy and Jeff, were as concerned as Jason was about his job so they took him to the church basement and practiced. Jason executed the exchange several times to his brother and sister so he was ready when the time came.

Here are the words of his job coach at his workplace: “Jason  was very chatty about it all and said his favorite part was holding the rings! He showed me step by step what his job was and said he didn’t drop the rings or get them stuck on his finger. He said it was good they didn’t get stuck otherwise he would have had to marry his step mom! He had such a great time and he is so happy.”

Oh, what a mess that would have been if he would have had to marry his step-mom. There is a country song in that to be sure. That logic is typical of Jason. He believes that you wear seat belts to prevent an accident. I remember his mom, my late wife Jean and I were once walking through the underground metro in Paris. We were very confused because we only understood a very little bit of French. In our befuddlement, Jean observed, “this is how Jason goes through life, with a little bit of a clue, but never completely understanding.”

That phenomenon was in full effect at the wedding reception Saturday. As a close friend of mine put it, “he held court like no other.”  Yet, when his brother wanted Jason to join him for a toast he hated to be pulled away from his wedding cake. There must be priorities and a toast versus more cake didn’t seem close to Jason.

As I watched, and now reflect on Jason’s delightful antics and the way he endears himself to everyone he meets, I also reflect on a piece of state legislation in Ohio. Abortion opponents are pushing Ohio to make it illegal for a doctor to perform an abortion if a woman is terminating her pregnancy to avoid having a baby with Down syndrome. I find the proposed legislation an incredible invasion of privacy and an infringement of civil liberties and generally repugnant. Yet, as I write in my book “Some People Even Take Them Home,” “I can say unequivocally that I believe our world would be an inferior place if there were no Down syndrome children. The pursuit of the perfect baby would deprive our world of real joys and triumphs. I hope the optimism that is inherent in this book may provide intellectual and emotional fuel for making those life-changing decisions.”

I don’t wish Down syndrome on a child or parent but last Saturday my overpowering thought was how awful it would be if there wasn’t a Jason at that wedding to touch people’s hearts. His sweet cluelessness and deep kindness makes us all special people.

Tim J McGuire is the author of “Some People Even Take Them Home” A Disabled Dad, A Down Syndrome Son and Our Journey To Acceptance

My Jason was the most resentful person in my family

Last Friday I wrote about an article from the Sept. 30 edition of The Chicago Tribune which I touted as a must read for anybody who cares about disability. The author of the Op Ed piece, Randi Gillespie, told how her seven-year-old son shouted at his nine-year-old Down syndrome sister “I wish you did not have Down syndrome.”

In my family the angriest person about Jason’s down syndrome was Jason himself.

The most maddening stereotype for me is that all Down syndrome people are happy, loving and contented. The fact is Down syndrome people have the same range of emotions all of us do. They can be happy and contented but they can also be angry, bitter and ticked off at their fate.

Our first exposure to the reality that Jason struggled with bitterness about his fate came a few months after his 16th birthday. He was in a McDonald’s with Tracy when she pointed out a Down syndrome woman at another table. Tracy said, “Jason look, she’s the same as you, she has Down syndrome.”

The reaction shook Tracy and revealed a truth none of us were ready to deal with.

Jason violently shook his head and exclaimed, “Tracy, I quit being Down syndrome! I’m sixteen now!”

Our first flip reaction was “if only it was that easy.” Slowly though the tragedy of the statement grew on us. At 18 and then again at 22 Jason expressed similar sentiments. At major milestones he apparently sincerely believed that he would “grow out it.”

We hadn’t even realized how much Jason actually focused on his disability. We never had a detailed talk about it. At my wife Jean’s instigation we seldom told him he couldn’t do something. When he made noises about driving Jean never told him he couldn’t drive. Instead, she said, “You can drive when you learn to read.” When he talked about getting married, she simply told him he could get married if he could find someone who wanted to marry him. That approach seemed to make sense to him.

Yet, it is still obvious at 35 that Jason knows his fate and wishes it were otherwise. That makes a Dad sad.

Some of the words in this post will be found in my upcoming book Some People Even Take Them Home.